If you see a tiny boy in a blue T-shirt dashing about Sheppey it might be miracle baby Rory Newing.

He was born five years ago this coming Monday with a deformed heart. It was so severe it was touch and go if he would live.

But now he has set himself a challenge of running 31k throughout this month to raise money for Great Ormond Street Hospital in London whose surgeons saved him.

Mum Daisy Newing from Unity Street, Sheerness, said: "Rory was born with a congenital heart defect called transposition of the great arteries (also known as TGA). His arteries were the wrong way round.

"He went to GOSH less than 24 hours after he was born and had open-heart surgery at 17 days old.

"His heart was swollen from the surgery so they had to keep his chest open for a few days. It was so surreal being able to look down and see my baby's insides working away to keep him alive.

"He was there until he was four-and-a-half weeks old until he was well enough to be transferred to Medway."

She added: "Rory loves going to the pigeon park in Trinity Road to run around as well as the beach.

"I have started a just giving page for him. He has currently raised £40 but would like to raise more before the end of July. We know that money is tight these days so have set a target at £75 as every little will help save a child's life."

Last year Rory did a similar challenge and raised more than £500.

Daisy added: "While Rory was in hospital I lived in accommodation provided for by GOSH. The staff went above and beyond for my family. The hospital was beautiful and bright, they made it as nice for the children as possible.

"There are no words in world to describe how thankful we are to GOSH."

Rory was born at the University College London Hospital so was close to London’s Great Ormond Street Hospital. He was transferred less than 24 hours after his birth.

If you'd like to help Rory raise more money, visit here.